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Fight to survive

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04 August
๐—ง๐—ต๐—ถ๐˜€ ๐˜€๐˜๐—ผ๐—ฟ๐˜† ๐—ผ๐—ฟ๐—ถ๐—ด๐—ถ๐—ป๐—ฎ๐—น๐—น๐˜† ๐—ฎ๐—ถ๐—ฟ๐—ฒ๐—ฑ ๐—ผ๐—ป ๐Ÿญ๐Ÿฌ ๐—๐˜‚๐—น๐˜† ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฎ. Treatment for rare diseases can be staggeringly expensive. But when medical aid schemes refuse to pay, families are in for the fight of their lives. Carte Blanche explores the bitter conundrum families are confronted with as they try to access life-saving medicines for a group of rare genetic conditions called lysosomal storage disorders. A single monthโ€™s supply can cost hundreds of thousands of rands. The good news for patients is that these diseases are Prescribed Minimum Benefit conditions, which means that according to the Medical Schemes Act, medical aid schemes are obligated to cover treatment. And yet in case after case, medical aids refuse, dragging patients and their families through lengthy hearings with the Council for Medical Schemes. To date, the process has always resulted in a decision in the patient's favour. But at what cost to the patients while theyโ€™re forced to wait?
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๐—ง๐—ต๐—ถ๐˜€ ๐˜€๐˜๐—ผ๐—ฟ๐˜† ๐—ผ๐—ฟ๐—ถ๐—ด๐—ถ๐—ป๐—ฎ๐—น๐—น๐˜† ๐—ฎ๐—ถ๐—ฟ๐—ฒ๐—ฑ ๐—ผ๐—ป ๐Ÿฎ๐Ÿณ ๐—ก๐—ผ๐˜ƒ๐—ฒ๐—บ๐—ฏ๐—ฒ๐—ฟ ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฎ. Technology is turning the tide in the fight against the illicit drugs trade and its many associated crimes. For better and worse. These days, anyone wanting to get their hands on hard drugs neednโ€™t risk the danger and uncertainty of the black market. With the evolution of social media and online apps, criminals are having a field day marketing their illicit goods to people from all spheres of society and โ€“ scarily - to any child with access to a phone. From pornography to street and prescription drugs, to guns and forged official documents, all are for sale on many of the platforms we rely on every day: community information apps, e-hailing, social media and messenger apps with a โ€œpeople near meโ€ function. Carte Blanche follows a Crime Intelligence-driven investigation into online drug running as we join a sting operation and listen to harrowing stories of victims having to pay with their bodies when they fail to reach the sales targets set by their criminal bosses. Your favourite episodes are now available on Carte Blanche: The Podcast: https://bit.ly/PodcastCB